Cerebral Palsy is not progressive. Meaning: the damage that was done is never going to get worse, but that doesn’t mean that my life with cerebral palsy does not change as I age. If I don’t use my adaptive gear, do my therapy regimes, get regular health checks, and actively engage my weak muscles, myContinue reading “CP = lifelong issues”
Tag Archives: cerebral palsy
CP = being underestimated
When a person hears the word disabled or any other label, the things that they can assume about you are often far below what you are capable of. When I was in grade school, it was assumed that I had lower intelligence and cognitive ability. When I went to college, my first roommates assumed thatContinue reading “CP = being underestimated”
CP = lots of failures
How has a failure, or apparent failure, set you up for later success? I used to think of myself as a failure, coward, and a whole host of other self-deprecating thoughts and put downs. As I’ve grown, I have come to see that every setback, every ‘failure’, every time I’ve had a false start hasContinue reading “CP = lots of failures”
CP = adapting
Early on in my childhood, my mother taught me the marine slogan: “improvise, adapt, and overcome.” Improvising, adaptation, and overcoming obstacles is how I live my life. As a kid, it was improvising and adapting things I wanted to do with what I was physically capable of. As an adult, it has become my lifeContinue reading “CP = adapting”
February 28
I learned today that today is “Rare Disease Day,” and because I am part of several community orgs for cerebral palsy, I learned that CP and the term rare are connected. Here’s something I learned today: Cerebral palsy (CP) is the most common lifelong physical disability, yet many of its root causes – including geneticContinue reading “February 28”
Indomitable Bellatrix 