cerebral palsy – Indomitable Bellatrix

Disability Pride Momth

This month just like last month is so important in the world in which we live. We are living in a time when our rights, protections, and avenues of livelihood are being threatened. We absolutely must stand up and make ourselves known. I am a disabled woman with Cerebral Palsy. I have from a veryContinue reading “Disability Pride Momth”

Gift

It has been a long time since I’ve considered cerebral palsy as anything less than a gift. I advocate for myself for what I need to live my best life now. Knowing that one day I won’t have to… I’ll be able to do whatever I want. Sometimes, it’s a gift I do not want,Continue reading “Gift”

Injury

I was in the second grade. We lived in a two family home. My grandparents lived in the downstairs unit, and we lived upstairs. My sisters were gone for the afternoon, so I was in our part of the house alone… but my grandmother was at home. She called me downstairs for something… I don’tContinue reading “Injury”

Birthday Month

I’m celebrating my birth for the entire month. Here, it’s going to be memories from every year of life. I was born at the end of the 70s. My memories from the first years of my life are mainly stories I have been told. Story 1: Apparently, I died the day I was born. IContinue reading “Birthday Month”

CP Awareness Day

I have been #goinggreen for CP throughout the month. Today, I am going to recap my life with cerebral palsy. I have left sided hemiplegic cerebral palsy. I was diagnosed at 6 months old. I have been to every possible therapy you could imagine throughout my childhood. I have had 3 upper extremity surgeries toContinue reading “CP Awareness Day”

CP = many masks

Do you think you’re hiding your true parts from people? Because of cerebral palsy, I often wear a mask to please people’s sense of ability or capability. The things I’ve learned to do with one hand because of my hemiplegia means that when someone asks me to do something, chances are that I can. OrContinue reading “CP = many masks”

CP = giant community and loneliness

Cerebral Palsy is the most common lifelong disability. There are a lot of people throughout the world who can understand at least part of my life with CP… including my husband. At the same time, every person with CP has a unique experience. Even a similar diagnosis and brain damage can affect two people veryContinue reading “CP = giant community and loneliness”

CP = Strength

“Because you are who you are… you have to be stronger than everyone else.” Fighting every day for the quality of life that I deserve is a battle of wills. It is the strength of spirit and character to do the PT and OT exercises as often as I do. It took strength to admitContinue reading “CP = Strength”

CP = Therapy

I was diagnosed with cerebral palsy at 6 months old. My first concrete memories are being in ‘school’ doing all my therapies. I distinctly remember speech therapy, physical therapies, occupational therapies, and even psychological therapies all throughout my youth. From each type, I learned a lot of things. The things that I learned through allContinue reading “CP = Therapy”

CP = resilience

Any given day in the life of someone with cerebral palsy usually entails dealing with some form of adversity or trial. That could be adapting to my ability of the day since spasms and other aches and pain could affect what I can do on a given day. It could be the emotional and mentalContinue reading “CP = resilience”