What strategies do you use to increase comfort in your daily life? Adding comfort to my life is done when I take time to move my body. Stagnation is the loss of mobility, independence, and eventually death. So exercise, my PT regimen, and regular wellness visits are crucial to my comfort. To help with movement,Continue reading “Disabled Pride Month Edition”
Category Archives: cerebral palsy awareness
Quick Update and A Prompt
I didn’t find anything to write the last couple of days, and I didn’t want to force anything out. So, I took the time to reflect the last couple of days. Work is going well. I hate that we are expected to do more than we were previously but, it is benefiting patients so, it’sContinue reading “Quick Update and A Prompt”
Gift
It has been a long time since I’ve considered cerebral palsy as anything less than a gift. I advocate for myself for what I need to live my best life now. Knowing that one day I won’t have to… I’ll be able to do whatever I want. Sometimes, it’s a gift I do not want,Continue reading “Gift”
Injury
I was in the second grade. We lived in a two family home. My grandparents lived in the downstairs unit, and we lived upstairs. My sisters were gone for the afternoon, so I was in our part of the house alone… but my grandmother was at home. She called me downstairs for something… I don’tContinue reading “Injury”
CP Awareness Day
I have been #goinggreen for CP throughout the month. Today, I am going to recap my life with cerebral palsy. I have left sided hemiplegic cerebral palsy. I was diagnosed at 6 months old. I have been to every possible therapy you could imagine throughout my childhood. I have had 3 upper extremity surgeries toContinue reading “CP Awareness Day”
CP = many masks
Do you think you’re hiding your true parts from people? Because of cerebral palsy, I often wear a mask to please people’s sense of ability or capability. The things I’ve learned to do with one hand because of my hemiplegia means that when someone asks me to do something, chances are that I can. OrContinue reading “CP = many masks”
CP = giant community and loneliness
Cerebral Palsy is the most common lifelong disability. There are a lot of people throughout the world who can understand at least part of my life with CP… including my husband. At the same time, every person with CP has a unique experience. Even a similar diagnosis and brain damage can affect two people veryContinue reading “CP = giant community and loneliness”
CP = Strength
“Because you are who you are… you have to be stronger than everyone else.” Fighting every day for the quality of life that I deserve is a battle of wills. It is the strength of spirit and character to do the PT and OT exercises as often as I do. It took strength to admitContinue reading “CP = Strength”
CP = Therapy
I was diagnosed with cerebral palsy at 6 months old. My first concrete memories are being in ‘school’ doing all my therapies. I distinctly remember speech therapy, physical therapies, occupational therapies, and even psychological therapies all throughout my youth. From each type, I learned a lot of things. The things that I learned through allContinue reading “CP = Therapy”
CP = WMBIQ
What is one question you hate to be asked? Explain. WMBIQ = well-meaning but ignorant questions. The most annoying of them is asking about my braces out of context. Don’t get me wrong, ask questions, but don’t keep me from doing my job or assume that just because my gear is visible means you haveContinue reading “CP = WMBIQ”
Indomitable Bellatrix 